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FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL

 

rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

rideATAXIA Dallas 2019 Dedicated to Sam Brown

Screen Shot 2019 04 02 at 4.07.40 PMMany people think it is "unlucky" or "unfortunate" to be a "winner" in this genetic lottery we call Friedreich's ataxia (FA), and in many respects, I absolutely agree. However, I cannot deny that FA has enriched my life with people who teach me the very definition of grit and character. One of those people was my friend Sam Brown.

I met Sam Brown the night before the first rideATAXIA Dallas in 2011. Beyond introductions, few words passed between us but his smile spoke volumes. I caught him observing me from afar a couple of times. I would look over and he'd flash his signature grin.

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2018 Woodstock and rideATAXIA Chicago

ChicagoFA Woodstock and RideATAXIA Chicago are two events I have always wanted to make it to. I went to FA Woodstock on Friday, July 20th for the day and got to meet a lot of Midwest FA families. FA Woodstock was a fun event to be at, specifically because we got to relax on the Flying H Ranch and bond with each other throughout the entire day (two full days for those who went the whole time).

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2018 rideATAXIA Chicago - Alex Fielding

rideataxia blog 3Most people have that one trip they look forward to every year. Some go to warm beaches in Mexico to escape the cold of winter. Some meet family and friends on a cruise ship for entertainment and exploration. Others head out in the wilderness for an adventure with Mother Nature. For me, I fly to Chicago to visit my cousins Brandon, Audrey, Indiana, and Lulu, and join dozens of FA patients, family, and friends at RideAtaxia!

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Cyclists ride around Channahon area to raise money to cure rare disease

rideATAXIA Chicago

On July 22, hundreds of cyclists congregated at Central Park in Channahon in order to fulfill the vision of one man who wants to fight back and find a cure for a rare disease.

At the age of 17, Kyle Bryant received news that his struggles with coordination and throwing during baseball were not fleeting moments, but symptoms of a rare genetic disease called Friedreich’s ataxia.

Read more HERE

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My 1st rideATAXIA Experience

Dillon 2On October 1st, 2013, I was diagnosed with FA; my family and I knew nothing about what it meant. This year will be the 5th year anniversary of my diagnosis, and I've been reflecting on how much I've learned.

I'm going to share specifically about my rideATAXIA experience. A year went by after being diagnosed, before my family and I went to see Dr. Lynch and his team at Children's Hospital of Philadelphia (CHOP). During our meeting with him, he told us about 2 major events in Philadelphia: The CHOP FA Symposium and rideATAXIA and their stories. He mentioned that we were too late for registration for that year and should try and plan to go next fall!

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