Showing 13–24 of 547 results for ''
Ambassador
Christina Cordaro
Christina has served as an ambassador since 2013, and was apart of the original leadership team! She dedicates her time to keep the legacy and mission of FAmily member, Matt DiIorio, which is to help others with FA experience the benefits of the FARA community. Christina loves attending live concerts, Buffalo Bills games and going on strolls in the park on her Catrike with her husband, Justin, and their puggle, Max. She works full-time in the hotel industry as well. Her favorite FARA event was her annual 5K Mother's Day Race for Christina, but now her family's focus is having Team Christina - The Purple Caped Crusaders at rideATAXIA Philly. Christina would tell someone newly diagnosed “do what you can while you can”.
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Ambassador
Isaiah Curry
Isaiah has served as a FARA ambassador since 2024 and dedicates his time to the community of FA patients. He enjoys gaming, school, and talking to new people. His favorite FARA event is the Philadelphia symposium. Isaiah would tell someone newly diagnosed that while this is a major condition that will probably juristically change your life, there are new developments in medicine every day. While this condition can change your physical ability, it cannot change who you are as a person.
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Ambassador
Sydni Gibson-Dupre
Sydni Dupre has served as a FARA ambassador since 2023 and dedicates her time to supporting the FA community and its efforts to search for a cure. She uses her social media presence to spread awareness about Friedreich's ataxia and to share her life, helping others learn about the effects of FA. One of her favorite FARA events is the Cure FA Soirée. Sydni would tell someone newly diagnosed that they are not alone in their struggles, and everyday we are one step closer to curing FA.
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Ambassador
Silvia Fernandes
Silvia has served as a FARA ambassador since 2024. She loves reading and going to the gym. Silvia loves sharing her experiences with other people with FA.
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Ambassador
Noah Griffith
Noah has served as a FARA ambassador since 2020 and dedicates his time to building and connecting the FA community. Noah graduated in 2023 from Auburn University with a B.A. in journalism. He is a sports journalist but also runs his own blog page where he shares about his life with FA. His favorite FA event is the Cure FA Soirée in Oklahoma City. Noah would tell someone newly diagnosed, "All we can do is keep fighting and remain hopeful."
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Ambassador
Anna Helmig
Anna has served as a FARA ambassador since 2024 and dedicates her time to raising awareness and fundraising for FA. Anna is a current junior in highschool. She likes to read, play archery, and hang out with her friends. Her favorite FARA event is rideATAXIA Philadelphia. Anna would tell someone newly diagnosed to keep living life to the fullest and have hope.
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Ambassador
Sienna Helms
Sienna has served as a FARA ambassador since 2024 and dedicates her time to supporting others with FA and spreading awareness. She is a cheerleader at her high school, and loves animals. Her favorite FARA event is the rideAtaxia in Philadelphia! Sienna would tell someone newly diagnosed, “This disease is full of unknowns, but there are beautiful journeys and people you will meet through this community.”
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Ambassador
Tricia Herman-Maul
Tricia has served as a FARA Ambassador since 2019 and dedicates her time to participating in clinical trials and educating others about the importance of being involved. Her favorite FARA event is any rideATAXIA. Tricia would tell someone newly diagnosed to live each day to the fullest and learn to be proud of yourself.
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Ambassador
Becca Hill
Becca has served as a FARA ambassador since 2024 and dedicates her time to spreading awareness about the FA community and raising money for treatments. Becca is a junior in high school and she has four older siblings, including one sister who also has FA. She loves watching sports, going on walks with her 3 dogs, and Dunkin’ iced coffee! Her favorite FARA event is the “Night to Fight FA”. Becca would tell someone newly diagnosed, “You might feel alone when you are first diagnosed or like nobody understands, but the FA community is so caring and powerful that once you get involved you can feel how many people you have fighting for you.”
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Ambassador
Mekayla Holm
Mekayla has served as a FARA ambassador since 2019 and dedicates her time to bringing awareness to Friedreichs Ataxia. She currently works as a Global Business Analyst, and in her free time she loves practicing new makeup looks. Her favorite FARA event is the FARA Energy Ball. Mekayla would tell someone newly diagnosed, “Life doesn't stop after diagnosis, we learn to adapt!”
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Ambassador
Roxanne Homayoun
Roxanne has served as a FARA ambassador since 2024 and dedicates her time to help find treatments for FA. Roxanne reads an impressive amount and is very hopeful that she can start to write again. She loves to play with her pet guinea pig, Caramel. Her favorite FARA event is the ICAR event in London this year. Roxanne would tell someone newly diagnosed, "Don't underestimate how important their attitude is to their prognosis."
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Ambassador
Jake Juip
Jake has served as a FARA ambassador since 2024 and dedicates his time to assist others fighting with FA. Jake is enthusiastic about studying Game Design as a College for Creative Studies Peacock. His favorite FARA event is rideATAXIA Chicago. Jake would tell someone newly diagnosed to appreciate the little victories.
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