It is all about the mission!
I am so excited by the number of people we have had visiting the blog and spreading the word on Facebook. We wanted to do RAAM to raise awareness and educate people about Friedreich's ataxia and FARA's mission to bring treatments forwarded even faster.
What is Friedreich's Ataxia (FA)?
Friedreich's Ataxia is a progressive, neurodegenerative condition that dramatically, unexpectedly alters lives causing:
*Loss of coordination and muscle weakness in the arms and legs
*Vision impairment, hearing loss, and slurred speech
*Life-shortening cardiac disease
What is FARA?
The Friedreich's Ataxia Research Allianceis a non-profit organization dedicated to curing Friedrech’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.
Today, inpiduals with FA are hopeful due to significant research breakthroughs that FARA has helped facilitate over the last decade. We are now in the "treatment era" as clinical trials are in progress. Each day, the FARA scientific community moves closer to realizing our goal of slowing, stopping, reversing and ultimately curing FA. Freedom from the debilitating, devastating effects of FA is on the horizon.
Learn more about FA, FARA and the research progress at:
"Acting alone there is very little any of us can accomplish. Acting together, there is very little we will NOT accomplish."
Back to the road!