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Team FARA Blog

Team FARA members are running, walking, biking and swimming for FA research around the world.

While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.

NYC Marathon 2012

Congratulations to the Team FARA - NYC 2012 Marathon Team for their amazing efforts this year.  John Lagedrost, Margaret Hay, Lori Pitta, Steve Wisinski, Brian Schutter, and Patrick Hamill fundraised over $20,000 for FA research! While the NYC Marathon was canceled due to Sandy, they showed dedication to the cause by spreading awareness and continued fundraising. Many even went on to accomplish their goal and cross a finish line for Team FARA in a different location.


Brian Shutter – Manchester City Marathon – November 4th

John Lagedrost – Richmond Marathon - November 10th

Steve Wisinski – Veterans Marathon – November 10th

Lori Pitta – Philadelphia Marathon – November 18th


Please visit their Team FARA personal fundraising pages - and thank them for their efforts on behalf of FARA and the FA community!

Team FARA & Outback Steakhouse in Tour de Palm Springs

Tour de Palm Springs

Friday, February 8th  & Saturday, February 9th, 2013



Join Team FARA in Tour de Palm Springs 2013. Choose from 1, 5, 10, 15, 25, 55, 100 mile bike routes through the beautiful Palm Springs, CA while raising funds and awareness for FA research! 


This event sets the stage for a strong year of fundraising for Team FARA which has become a significant research funding effort. Last year Team FARA fundraised over $20,000 in Palm Springs, and we are looking forward to bringing everyone together to exceed that goal and have a great day of cycling.

Chicago Marathon- Viki Peer - October 7, 2012

So, I just ran in the Chicago Marathon and although I didn't run with anyone else, I didn't feel alone because I knew I was part of Team FARA.  I raised (and will continue to raise) money for FARA because of the Suttons.  Eight summers ago I volunteered at MDA summer camp in Illinois which is where I met the Suttons: Jamie, Jenn, and Casey who all have FA (their other brother Mike, although equally awesome, does not have FA).

Team Adirondack - High Sierra Trail

Good Luck on Sunday to Team Adirondack!

“I feel Connected to FARA through Dlyan McDonnell and the McDonnell family in Glens Falls, NY.  We were neighbors growing up and were reconnected over the past few years when our dads started playing together in a band (The Marcabes).  He has inspired our Team to get out and do something for FARA; this will be Team Adirondack’s third year participating in the Team FARA Program.

We ended up going with the High Sierra Trail in CA to try to do something big and get people into the event and get them educated.  The trail is ~70miles long and traverses the highest point in the continental US (Mt Whitney 14,505 ft). I got hooked on the trail about a year and a half ago after reading about it in the Backpacker. To get ready, I run and bike regularly and do a good bit of hiking in the Adirondack Mountains.”

-Mike Delsignore

Team Adirondack

Support Team Adirondack by going to




Cogan's Heroes Century Ride

My name is Patrick Cogan, and I have FA! When was I diagnosed? Funny story; I was symptomatic probably around 5-6, I was misdiagnosed at 11 and that mistake wasn’t corrected until my balance got so bad I caved and found a doctor. I was 25!

Immediately following my diagnosis I started putting the pieces together, all of the little ‘odd’ things started making sense; Coughing till I gag (out of nowhere), my legs flinching at night, my hands trembling trying to grab a beverage. It was like a light bulb in my life just was turned on, THEN, came the darkness. Walking issues, fatigue, the risk of heart disease…all the negative possibilities FA brings with it.

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