Two years ago I found out that my friend's daughter had been diagnosed with FA. Hopper and I have known each other since we were teenagers at camp. He and my brother, Phil, (also a member of Team Tri 4 Gracie), were tent mates for years at Camp Acadia, while I attended the sister camp, OLL, in the '70's and '80's. Since 1992 a group of us have gone camping once a year near our old camp grounds in the Catskills. We have gotten to know each others' children during these time. It was heartbreaking to hear about Gracie's diagnosis -- we had known her since she was a toddler.